It is a strange way to live. Constantly waiting. Never knowing when the phone call will come. My phone rang about 10 times today. Phone calls from different family and friends about a variety of different things. Each time the phone rang, before I had a chance to see the caller ID, the thought races through my mind that it could be the transplant center. Each time my heart rate picks up a little bit, only to return to normal when I see who it is that is calling.
It is hard to escape the thought that the call could come at any moment. My wife and I each have our bags packed and waiting by the front door. I go to bed every night with the phone right next to the bed hoping that I will be awakened in the middle of the night by the phone ringing. I wake up every morning checking to make sure that I didn't miss a call.
I think that part of the problem is that we were spoiled last time I had the transplant. I got the call from the transplant center the first day I was on the list. We didn't have this feeling of constantly waiting.
In the mean time, we are trying to stay busy and live as normally as possible. I am still feeling tired so it can be hard at times. We did take the boat for a little bit this weekend and went to a friends house one night. It felt good to get out and feel like we are living our lives.
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